As most have noticed and commented and messaged me about, I have not done a video or proper update as promised. I am sorry. Yes I know I had said I would, and from dialysis, however let me update you all on the first bit of news. My laptop is not working!!!! Tragic. I know. But I will do a video from my phone and upload it on monday or wednesday for sure!
Now for the much needed update ( mostly because this blog is my journal and when I write I breath a sigh of release) but also for my readers (mom and dad heheh)
1) My cousin is up walking around and had officially booked an appointment for the 20th of July to see what the “status” is for the transplant!!!! Hurrayyy!!!!
2) Summer is in full swing! And I love it!
3)I need a new laptop (see above hehe)
4) Syptoms have kinda changed this past month or so. Sad I know but a good reality check (more to come on this bellow)
5)My support group (family, friends etc) is changing the world, and I could not be more proud!
6) Accepting help/and giving (not just the tangible)
Alright so let’s work our way up,
5/6) My support group and giving:
For those who don’t know or have not caught on yet, I am extremely blessed when it comes to the people who surround me. From my pets, to parents, family and friends, even strangers, everyone around me seems to be an amazing gift in my life. And this month really showed that in full force. Not sure what it is about summer but it seems to make people what to give! Time, energy, thoughts, gifts and more. And all the people in my life seem to be on a roll with this. From my friend “B” , going to Peru to help build and teach, to “E” visiting family for a week in Halifax, and “E.L” spending 8 weeks traveling South East Asia. Stranger “X” from work told me that since he has found out I needed an organ he has told all his family and friends, and has acted upon it himself, to sign their donor cards. Now wait. You may be thinking that non of this sounds like “giving” or acts of giving . But let me stop you and say IT IS! I have found that people don’t accept gifts/give gifts openly anymore. We all walk about life in silence thinking, don’t tell anyone I donated money, or gave up a seat on the subway because ill sound conceded. When really everything should be acknowledged as a gift! Going to visit family far away and helping out for a week is a gift. And in return one self got to travel, that is a gift received. So I send a gift of love out to everyone giving and in return home to be able to give as much as I receive…
4) My symptoms:
So these past few weeks/months all had been stable until 3 weeks ago. Dialysis had gone routine and I was in my usual speedy “get me out of here mood” when I got hit by dizziness. Taking it usually as light “no big deal”. I was with my mother and decided I would sum it up to the need for food and drink, we also decided rather then the same cafeteria as always at TGH, we could grab food at SickKids! PEEERRRRFFECCCTTT! Still feeling winded I told my mom to grab food and I would sit out and wait at the closest table. Food in, and symptoms not changed, second solution would be a tasty beverage from non other then Starbucks. In line I placed moms order and within seconds was in her arms, trembling and eyes rolling. Dramatic . I know! But true. Wisp back across the street to emerg. Tested and told not to sleep. The results were fine. However what did happen.?!!???
To be honest no one actually knows, and I am to be followed up with a Neurologist (brain doctor) soon to hopefully rule out “epilepsy” or “seizures”. With all that said, it really was a reality check for what a major thing dialysis really is. And how it affects you even when you don’t think anything is wrong. Being the nerd that I am I did my research and tones of patients experience major side affects post dialysis, anything from seizing to blurred vision, cramping and fainting. I am the exception! I am the low percent that has no problems post dialysis! Wow! It really got me thinking, if dialysis for me regularly is not a great way of life, I cannot even imagine those who actually struggle with it daily! So, sum up this event, a major reality check.
3) My laptop had failed me! Waaaa, time to get a new oneee!!!!!
2) I love summmeerrrrrr! I love sun!!!! (Please wear spf anything!!! -more then 15 is best and don’t worry even with spf 50 you will still get a nice tan)
1) My cousins great!
I have to tell you guys, I have never seen someone bounce back so fast from major trauma. Let’s recap, April 19 2011, my cousin and kidney donor Mauricio was t’d by a car while he was on his scooter!!! Both legs had multiple fractures, brakes, screws put in and more. Casts, rehab, etc, and today 2 1/2 months out , NO casts, at home, WaLking and almost 100% back to normal! It takes me longer to recuperate from a bad hair cut let alone a full accident! I can’t even tell you all, how proud I am of him, and how fortunate, bleSsed, loved and honored I feel to be able to call him my family, my friend, my cousin and my donor! This is the type of person hero’s come from! So as our journey together to transplant continues, we now count down the days to his appointment with the hospital to see what the next steps are!!
that’s all for now! And for sure there will be a video this week!
Love love! And thank you from the deepest part of my heart for all the support, love, care, responses, msgs and more!!!!
So it has been a while and i keep being hesitant as to posting new videos, info, or msgs. Reason being , i dont want to be sooooo repetitive. However. I finally have tones of stuff to talk about, so in the next 24 hours, FROM DIALYSIS, i will be posting a new video. Please dont be too excited as it is not over the top of interesting news, but some fun facts, new symptoms, and my life journey hehehe…..
ps i would like to also mention a big thank you to all my viewers, readers etc. The response is beyond what i would or could ever imagine.