Living with Renal Failure. This is my journey. My info. hopefully a way for people to become more aware of donation, illness and more. XOX MJ

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today i love my line, no matter what life throws me, my line keeps me alive. 

today i love my line, no matter what life throws me, my line keeps me alive. 

VLOG TONIGHT! STAY TUNED FOR UPDATE.. XOXO MJ

24 hour good friday tweet challenge! Calling all “tweeters” to tweet any influential people you follow to tweet “sign your donor card” organs save lives.we can all be heros! tag me or let me know once done so i can see how many people do this! xoxoxoxooxoxoxxoo lets all help save the world!

Living With Kidney Failure (by mjbouey)

my mind running at 4 am….xoxo

The calm after the storm…. that is my life right now.

It has almost been 3 weeks since my attack and part of me cannot believe it. I think there is a sense of fear in me now that i had not had in a very long time, if not ever. Since my seizures and coma i feel out of control. **for those who don’t know, when it comes to my health i am very picky and love being in control.*** I have never experienced an emergency like this. As i have shared before i have had my share of fun times in and out of hospital but i have never been in a “codeblue” or coma. Part of me almost thinks i just have never aloud it, seeing as i always want to know what is being done in my health care and i always trying to perfect it. Now with that said, i also have a sense of calm in me. I am alive, and that is more then i can ask for. Its an odd feeling really. So to try and sort it our, here i sit at 4 in the morning typing what will end up being a mix up of thoughts, feelings and emotions. Enjoy. xo mj lol

I often mention in my videos that i am blessed to be doing well and stable on dialysis because of all the risks involved, and how most patients are not as fortunate. Well today sitting on dialysis i took a strong look around and realized that i was no longer the exception. I had experienced one of the realities that comes with having renal failure, and it was not at all pretty. It was something out of my control, but most of all it was scary. I too was facing the same fears and risks as almost 38,000 others in Canada do every day. This has got me to thinking, not just about kidneys, but about all organs and the reality that society faces everyday with the complications that come in having an organ fail. Well you can imagine, i was sitting on dialysis and felt totaly usless. I was at that same unit every day, trying to offer a glimps of hope to dialysis patients by letting them know that transplant is worth it, not far, the wait will pay off etc, when really half of the people in that room would not make it on the list based around the fact that they were not “stable”, or would be waiting a really long time. So… time to change alllll of the above. For the next… well.. while. i am going to try and change organ donation…. not just for my own but for everyone i love, know, and most of all for all the patients i see every day that inspire me.

so with all that mix of emotion and thought shared. i have to say, thank you, for inspiring me. you, the patients of dialysis, the patients of the hospital and everyone in my life… xoxox mj

ps thanks for listening.

mjbouey’s Webcam Video from February 13, 2012 04:26 PM (by mjbouey)

Florence + The Machine - Shake It Out (by FlorenceMachineVEVO)

Living with Kidney Failure (by mjbouey)